Canadian Morphea Registry for patients with Scleroderma
Registre canadien de la morphée pour les patients atteints de sclérodermie

Established in 2024

XX active sites & XX lead investigators

XX paediatric sites & XX adult sites

XX + Subjects

Centralized data-base & Biobanking

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About Us

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Director & Chair,
Dr. Elena Netchiporouk

Objectives

Primary Objectives

To collect a large pool of high quality standardized clinical and molecular real world evidence (RWE) data in a diverse range of patients.

To create a coast-to-cost network of patients and investigators.

To improve clinical care by providing healthcare providers with access to comprehensive and up-to date information on the disease.

To serve as a platform for patient advocacy and support.

Secondary Objectives

To create a database for Bio-Banking.

To create and facilitate a Research Network.

Help support development of Consensus Statements & Guidelines.

Events

Name of event

Date: Aug 25, 2025

Time: 8am – 5pm

Name of event

Date: September 10, 2025

Time: 10am – 2pm

Name of event

Date: January 3, 2026

Time: 10am – 2pm

1st Annual Canadian Morphea Research Summit

A celebration of growth, innovation, and teamwork for Canada’s first morphea registry!

Date: October 18, 2025

Time: 8am

Sponsorship

CONTACT US

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Montreal General Hospital – 1650 Cedar Avenue, Montreal, Qc, H3G 1A4

info@cmore.ca

Canadian Morphea Registry for patients with Scleroderma Registre canadien de la morphée pour les patients atteints de sclérodermie

About Us

Director & Chair, Dr. Elena Netchiporouk

Objectives

Primary Objectives

Secondary Objectives

Events

Name of event

Name of event

Name of event

1st Annual Canadian Morphea Research Summit

A celebration of growth, innovation, and teamwork for Canada’s first morphea registry!

Sponsorship

CONTACT US

Canadian Morphea Registry for patients with Scleroderma
Registre canadien de la morphée pour les patients atteints de sclérodermie

Director & Chair,
Dr. Elena Netchiporouk